Monday, 27 May 2013


It seems that Heidi does, indeed, have Kawasaki’s disease. She received the treatment yesterday afternoon into the night and since then, her temperature has not reappeared. It is reassuring to know that we have finally found what we are dealing with, it is scary to know how long it has been left untreated.

We are hoping to get an appointment at the Brompton tomorrow, so that Heidi can have an echo done. Then we will know how much, if any, damage has been done to her little heart.

The disease can do no more harm now, but as our consultant says, the die has been cast in the 15 days up to Heidi’s treatment (ideally Kawasaki’s is treated between days 5 and 10), so we wait, with bated breath, with tears, but also with the comfort of the Saviour, to find out what damage has been done.

We pray none.

Today she seems happy and healthy, cheery and chirpy; the little girl we had before this whole experience. And I’ll admit it hurts; it does hurt to know this is all it has taken to make her better. A Doctor friend of ours raised the alarm a week and a half ago and we questioned, but she was not showing the usual symptoms and so the disease has been left for 15 days, to do what it wanted to do.

I would feel desperate, hopeless, resentful and despairing were it not for the knowledge that we are totally held in the Father’s hands. That this whole journey has a purpose. As a friend from church, who herself has known a lot of heartache, said to me today…

God is too wise to make mistakes and too loving to be unkind.

We cling to that truth as we wait.

Please pray that somehow the disease will have avoided her heart. Pray for any issues to reveal themselves quickly so we can begin the potentially long road of treatment. Pray for strength. And faith. And hope.

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