Wednesday, 5 June 2013

Goodbye Hospital...

Yesterday was an emotionally charged day. The morning passed by in the usual routined hospital manner. Up, feed, ECG, breakfast, obs, Heidi's nap, Doctor's round. A routine that has, over the past three weeks, become like clockwork. Second nature, almost. I can see how people so quickly get institutionalized. After being cooped up so long, the big wide world does feel a big and dangerous place.

And that's where we were heading. The big wide world. We hoped. We prayed. I had been "going home" too many times now, only to be disappointed. But this seemed different. We had had the go ahead from Dr Rigby himself...

The Doctor checked over Heidi, requested a final ECG and suggested some further medication. Then he smiled, said he'd make us an appointment for next week, and that was it. We were going home.

I was elated, and what followed was a mad dash of getting everything together, as we had 25 minutes before Dave's parking ticket ran out (never try and park at the Brompton!) and possibly the slowest, most laid back and dawdly nurse in the entire universe (she was lovely but had no concept of urgency... and that's putting it mildly!)

After tooing and froing between the hospital and the pharmacy (don't get me started on that fiasco) we were finally on our way home. Heidi slept in her little car seat beside me, as the sun beat down. After being "locked up" for 22 days, the fresh air and sunshine was exhilarating.

Dave and his Dad chatted in the front while I looked down at our baby girl and the heaviness set in again. As always, my emotions flitting from ecstacy one minute at how far we've come, how bad this could have been and how well Heidi seems, to that deep ache that things will never be the same again. My baby girl's heart is damaged and even the most expert Doctors in the country can do nothing but sit and wait and see what happens... that's hard. It's tough. Its raw.

But I'm also thankful for all that this journey has taught us so far. It has shaken our world to the core, but thats not always a bad thing. When life is easy, its all to easy for God to be a spectator with the occasional say; when life takes a tumble, you find you're clinging to him for dear life. And clinging to him is where the real heart stuff happens, where you meet him in a deeper, more real way. He's at the peaks and in the deepest, darkest valleys. I know that.

This road we're on has also been incredibly humbling. It has choked me up on many occasions to realise how loved our little family is. What an incredible support network we have. Every single text was like a drop of water on a barren heart. It soothed, it quenched, it restored life. Thank you. From the bottom of our hearts for every text, card, comment, meal, offer of help, hospital visit and gift for the girls. You do not know what a blessing it has been to us.

People keep asking what they can do for us. We honestly want only one thing. We would love people to commit to pray for our Heidi. Not just in the immediate future, not just while things are still fresh and raw, but into the aftermath. Into the years of hospital visits and medication that she will have. Into the childhood years, the tweens and the teens and beyond. If people would commit to pray for her, we would be so thankful.

For now, we sit in our home, with our little girls sleeping upstairs, somehow beginning to comprehend the past 3 weeks. The adrenalin rush has stopped and this is where reality hits. The next few weeks will be tough for all of us as we adjust, as Heidi's heart condition becomes normality, as stuffing your baby daughter with medication starts to become part of the daily routine. Please pray for us. The adjustment will not be easy.

Please pray for Ava too. One little girl who literally could not stop kissing her baby sister all afternoon, who, when Heidi was crying last night, called out from her bedroom "It's OK, Heidi... Ava is here", who has already thrown a couple of tantrums as she readjusts to normality. Pray for her little heart too. It is physically healthy, but she, just like us, needs Jesus.

So thank you, again, from the bottom of our hearts. We know we are truly blessed.


  1. Our love to you all, trusting that you will continue to discover that the "clouds are big with mercy and will break with blessings on your head". John and Pauline

  2. I'm so glad you are home now and can start to readjust. I can't even begin to imagine the emotional roller coaster you've been on, are on even or what the future will hold for Heidi but I will keep her, and Ava in my prayers. I have been so inspired reading your posts and seeing your strength in this unimaginable situation, you are amazing!

  3. Thinking of you, Heidi & your family!
    Both my girls have problems with their hearts (not Kawasakis disease though) & I know what an emotional roller coaster you're on....Hugs x

  4. Thinking of you all hun. Can not even begin to imagine what you are all going through. Glad you are home though.

    Thank you for linking up with The Weekend Blog Hop

    Hope to see you again this weekend

    Laura x x x


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