Monday, 27 October 2014

Praying for Heidi...

I have been overwhelmed this weekend. Overwhelmed by people's words, text messages, hugs, promises of prayers and remembrance. It is such a comfort to know we have such an army of supporters behind us. God has used you all to minister to us throughout this journey with our little Heidi. From the very onset of her illness 17 months ago, we have felt your prayers, your words, your well-wishes upholding us. And I am so very, very grateful.

Our little girl has no idea how prayed for she is.

If I'm honest, I'm swinging between totally blanking out the fact that we're going, and being overwhelmed by that same sense of foreboding that seems to follow us to the Brompton every time, and then feeling that bizarre peace that cannot be explained... I'm trying to get my head, my heart, my soul prepared...

So many people have asked us what to pray for... so here you are. 

Pray for Heidi's arteries
There are three pieces of news we could get...
1) Bad News - Heidi's aneurysms have not come down at all... this basically means she will be on the medication for life, and we will have to learn to live with the fear that every temperature strikes through us, as well as frequent monitoring.
2) Frustrating/Goodish News - Heidi's aneurysms have come down further but not completely. This is better than bad news, but leaves us with another winter of uncertainty. If we get this news, we have no idea whether the aneurysms are continuing to come down, or whether they came down a little bit initially, and have since stopped.
3) Incredible, unbelievable news - That her aneusrysms have come down and healed. This would mean she could come off the medication, which removes all danger of chicken pox, flu and any temperature threat. I cannot say how wonderful this news would be...

Pray for Practicalities
Heidi will be prodded and poked a fair bit tomorrow. Nothing will be painful, but the scan itself requires her to lie still for 15-20 minutes while they scan her heart (a bit like an ultrasound scan). This, as I'm sure you can imagine, is no easy feat for a 19 month old. Please pray she will lay still, and not find the ultrasound too distressing.

Pray for Us
Pray for our hearts; that we will trust whatever the outcome. That we will be convinced that God holds our baby girl in his hands. That we will not fear. That we will know that God is good, and that he is the safest place to be when we are afraid.

Thank you. Thank you from the bottom of our hearts. We are so grateful to God for the way he has continued to uphold us throughout this, and for the way he has used you - our friends - to be such an unbelievable support and encouragement to us.

Please pray for our baby girl.


  1. On it. Praying for the best possible news - but also peace in all circumstances. xxxx

  2. Continuing to pray for you all xx

  3. We have you all and especially your baby girl in our thoughts Claire. Love & prayers xx

  4. Wir denken natürlich auch an euch und vor allem an Heidi!
    Und hoffen ganz fest, dass ihr mit dem besten Ergebnis nach Hause kommt- und selbst wenn nicht, bin ich mir sicher, dass ihr stark genug seid auch das noch zu meistern!
    Ich wünsch euch viel Kraft!
    Liebe Grüße Catrin

  5. xxxx I hope the big man chooses number 3 for you xxxx

  6. Ber og takkar vår Herre for Heidi. Ber for dykk alle som familie og særleg for imorgon. Snille og kjærlege helsingar besteforeldra x x x

  7. Good luck for tomorrow hun will be thinking of you and hoping for the best outcome will keep everything crossed. Xx

  8. My thoughts and prayers are with your family and your baby girl. Good luck xx

  9. Much love to you all today xxx

  10. Love and prayers Xx

  11. Praying for Heidi and you all tomorrow. Lots of love. Xx

  12. Bizarre peace?! Not so much - try answer to a whole heap of people's prayers!! We'll continue to think and pray for all of you in the waiting and in the finding out, and I really hope it's the best possible news tomorrow :)

  13. Bless you child in Jesus name

  14. Lykke til!! 🙏💗

  15. Just seen this, how did it go Claire? Mich x

  16. Praying for you all. Hope all went well today. xxx


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