Monday, 27 January 2014

Gearing up...

Excitement and dread, hope and fear, eager and yet anxious... the rollercoaster of emotions I feel when thinking about the appointment we have with this little lady tomorrow...

Yes, tomorrow is the day we return to the Brompton. Our Heidi will have her first Echo in 6 months... the last one being in July, just a few short weeks after Kawasaki Disease attacked her tiny body, wreaking havoc on her coronary arteries. Back then, her body was in remission, her little antibodies fighting, drugs working, miracles happening...

But now time has passed. The initial "healing" will have slowed down and we will discover the real, the long-term, the permanent effects of her KD. There is a hope; a small glimmer that we will hear the wonderful words we long to hear.

But right now I need to be realistic.

Hope can be your best friend, but crushed hope? That can destroy you...

And so we don't place our hope in a healed artery... though we long for that so very much. Instead we place our hope in the one who can't be crushed, but who has crushed death and the devastating diseases of a broken world once and for all.

He has the power to make our baby girl well. I believe that with all my heart. And He is GOOD. But he also holds the big picture and so we go, trembling, but knowing that whatever the outcome, we can trust him.

Please will you pray for us these next 48 hours - pray for healing for Heidi, pray for strength and trust for David and I whatever we discover, and pray that little H won't be too distressed for the Echo itself; requiring a 4 month old to lie happily on her back for a 20 minute heart scan was one thing, this time they have a 10 month old baby to reckon with...

Thank you so very, very much for all of your support and prayers. We are so grateful for each one of you who have taken our baby girl, and her little damaged heart, into your own hearts.

God is good. We go in his strength, his grace, his sovereignty. I do not know what I would do without him.


  1. Oh little Heidi, God is going with you! Let him comfort and entertain you during the long boring scan and let him reassure you that you are in his gentle loving hands! He has a plan for you, he chose you, out of all the options of possible children that your parents could have had, because you were the one he wanted here on earth in this time and place. You were born for such a time as this. I will be thinking of you all. xxx

  2. Praying every day xxxx

  3. Wishing you all the very best for tomorrow x

  4. The Lord be with you x

  5. Thinking of you x


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